Posted at November 20, 2015, by Mackenzie Fant, Comments Off on Ann Romney leads a sweeping MS study
Ann Romney, wife of former US presidential candidate Mitt Romney, was diagnosed with multiple sclerosis (MS) in 1998. After struggling for three long years with the horrible effects of the disease, she eventually started to bounce back and has fared well since. Today, she is spearheading a sweeping MS study.
Although there have been many advances in the treatment of this disease, there still remains ample uncertainty over how and why the early stages of MS can “wax and wane” so dramatically. In her new book, “In this Together,” (2015) she describes her MS journey and recounts the stories of many fellow MS patients who had given up on medication when initial treatments proved unsuccessful.
Romney has volunteered to be one of the first 2,000 participants in a new study called SysteMS, which will focus on discovering why certain people with MS will thrive for decades, while others end up debilitated for years. “The research is a collaborative effort from the Ann Romney Center for Neurologic Diseases at Brigham and Women’s Hospital in Boston; the drug company Biogen, which makes several MS medication; and Google, which will handle the sensor tracking and data analysis.” The volunteers in this study will wear activity sensors, answer frequent questionnaires and allow deep biologic profiling of their genes.
Hopefully the more in depth data from this study, will help give a better understanding of the course of the disease, so that the best therapy can be determined for each person diagnosed with MS.
Posted at June 4, 2015, by Raleigh Addington, Comments Off on Watch best-selling author Ann Romney share her experiences as an MS patient, and offer reasons for optimism
Ann Romney, wife of Mitt Romney, was diagnosed with multiple sclerosis (MS) in 1998 and treated at Brigham and Women’s Hospital. Speaking at the 2015 World Medical Innovation Forum, Ann shared her experiences as an MS patient and her reasons for optimism.
Having launched the #50MillionFaces social media campaign (referencing the number of people worldwide who have been diagnosed a neurological disease), Ann talks about her goals as she hopes to raise awareness of these complex and devastating diseases.
Ann also discusses her work at the newly launched Ann Romney Center for Neurologic Diseases at Brigham and Women’s Hospital. Acting as Global Ambassador to the Centre, Ann explains that this project is a global collaboration to accelerate treatment, prevention and cures for five of the world’s most complex and difficult neurologic diseases: MS, Alzheimer’s disease, ALS, Parkinson’s disease and brain tumors.
In the Fall of 2015, St. Martin’s Press will publish Ann’s memoir – “In This Together” – detailing her experience with MS. Click here for more details.
Posted at April 8, 2015, by Raleigh Addington, Comments Off on Expert speakers on the future of medicine and global healthcare
From wearable devices telling us how to measure and manage our health, to billions of dollars being spent by governments and private donors worldwide on healthcare reform, digitalisation and forward thinking innovation is driving significant disruption in the global healthcare industry.
Obamacare is changing healthcare in the US, whilst in China the ailing healthcare system is predicted to be modernised by tech giants like Alibaba and Tencent, who are looking to develop online prescription-drug sales and reshape the country’s $149 billion market.
Here are some speakers who offer insights into these disruptions by connecting them to the economy, healthy lifestyles, management and more. They also prioritise the healthcare issues facing the world today, share solutions on how to mitigate risks, and generate discussion on the impact of future healthcare technologies.
Linda Douglass: former Director of Communications for the White House Office of Health Reform (2009-10).
Paul Farmer: renowned doctor, medical anthropologist & Founding Director of Partners In Health.
Suneel Gupta: co-founder & CEO of RISE, using mHealth to tackle America’s obesity epidemic.
Sarah Harper: global thought leader & government advisor on the demographics of the 21st century.
Michio Kaku: widely known populariser of science & expert on disruptive future heathcare tech.
Daniel Kraft: pioneering physician-scientist, inventor & entrepreneur in biomedicine.
Trudie Lang: drives improvement in global heath by using the latest innovations in digital technology.
Jim O’Neill: appointed by British PM David Cameron to Chair a Review into AMR (antimicrobial resistance).
Jill Bolte Taylor: Harvard-trained neuroanatomist and best-selling author of “Stroke of Insight” (2008).
James Vaupel: expert on the impact that demographics will have on the economy of the future.
Posted at November 13, 2014, by Raleigh Addington, Comments Off on Nobel laureate Joseph Stiglitz examines the lessons learned from the current Ebola crisis
Writing for Project Syndicate, Joseph Stiglitz, widely regarded as one of the world’s finest economic thinkers, examines the lessons learned so far from the current Ebola crisis.
Joseph comments that globalisation does not only allow for good things to cross borders more easily; malign influences like environmental problems and disease can also ravage with less resistance.
He goes onto outline how the crisis also reminds us of the importance of government and civil society. Rather than turning to the private sector to control the spread of a disease like Ebola, who have little incentive to devote resources to diseases that afflict the poor or poor countries, we turn to institutions. Joseph notes that whilst governments may not be perfect in addressing such crises, their efficiency could improve if adequate funding was provided to the relevant agencies.
As such, Joseph argues that “what the Ebola crisis calls into question is our reliance on the private sector to do the things that governments perform best.” Indeed, he suggests that with more public funding, an Ebola vaccine could have been developed years ago. America’s ineffectiveness in this regard has drawn particular attention, Joseph adds, because it highlights the fundamental problem that it’s “largely private health-care system is failing.”
Joseph outlines that many factors contribute to America’s health lag, such as the critical factor of America’s outsize inequality. But what is clear is that “how countries structure their health-care system – and their society – makes a huge difference in terms of outcomes.”