Posted at November 20, 2015, by Mackenzie Fant, Comments Off on Ann Romney leads a sweeping MS study
Ann Romney, wife of former US presidential candidate Mitt Romney, was diagnosed with multiple sclerosis (MS) in 1998. After struggling for three long years with the horrible effects of the disease, she eventually started to bounce back and has fared well since. Today, she is spearheading a sweeping MS study.
Although there have been many advances in the treatment of this disease, there still remains ample uncertainty over how and why the early stages of MS can “wax and wane” so dramatically. In her new book, “In this Together,” (2015) she describes her MS journey and recounts the stories of many fellow MS patients who had given up on medication when initial treatments proved unsuccessful.
Romney has volunteered to be one of the first 2,000 participants in a new study called SysteMS, which will focus on discovering why certain people with MS will thrive for decades, while others end up debilitated for years. “The research is a collaborative effort from the Ann Romney Center for Neurologic Diseases at Brigham and Women’s Hospital in Boston; the drug company Biogen, which makes several MS medication; and Google, which will handle the sensor tracking and data analysis.” The volunteers in this study will wear activity sensors, answer frequent questionnaires and allow deep biologic profiling of their genes.
Hopefully the more in depth data from this study, will help give a better understanding of the course of the disease, so that the best therapy can be determined for each person diagnosed with MS.
Posted at June 4, 2015, by Raleigh Addington, Comments Off on Watch best-selling author Ann Romney share her experiences as an MS patient, and offer reasons for optimism
Ann Romney, wife of Mitt Romney, was diagnosed with multiple sclerosis (MS) in 1998 and treated at Brigham and Women’s Hospital. Speaking at the 2015 World Medical Innovation Forum, Ann shared her experiences as an MS patient and her reasons for optimism.
Having launched the #50MillionFaces social media campaign (referencing the number of people worldwide who have been diagnosed a neurological disease), Ann talks about her goals as she hopes to raise awareness of these complex and devastating diseases.
Ann also discusses her work at the newly launched Ann Romney Center for Neurologic Diseases at Brigham and Women’s Hospital. Acting as Global Ambassador to the Centre, Ann explains that this project is a global collaboration to accelerate treatment, prevention and cures for five of the world’s most complex and difficult neurologic diseases: MS, Alzheimer’s disease, ALS, Parkinson’s disease and brain tumors.
In the Fall of 2015, St. Martin’s Press will publish Ann’s memoir – “In This Together” – detailing her experience with MS. Click here for more details.
Posted at October 15, 2014, by Raleigh Addington, Comments Off on Ann Romney launches new centre to study neurological diseases
At the Brigham and Women’s Hospital in Boston, Ann Romney, former First Lady of Massachusetts (2003-07) and wife of politician and businessman Mitt Romney, launched the Ann Romney Center for Neurological Diseases, a research facility that will focus on finding cures and new treatments for Alzheimer’s disease, multiple sclerosis, Lou Gehrig’s disease (known as ALS), Parkinson’s disease and brain tumours.
Fresh off a presidential effort that raised nearly a billion dollars, Ann Romney hopes to raise $50 million to lay the groundwork for the centre’s research into the five diseases that affect about 50 million people in the U.S.
She describes the centre as her answer to the scores of MS patients who approached her on the campaign trail, desperate for advice and guidance from a fellow MS patient. After her husband’s 2012 run, she wrote a cookbook and planned to donate the proceeds to ongoing research at Brigham, a teaching hospital affiliated with Harvard Medical School.